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- Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME. Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population. NPJ Genom Med. 2023 Oct 23; 8(1):34. View in PubMed
- Merner AR, Kostick-Quenet K, Campbell TA, Pham MT, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P, Lázaro-Muñoz G. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial. Brain Stimul. 2023 Jul-Aug; 16(4):990-998. View in PubMed
- Riddle L, Joseph G, Caruncho M, Koenig BA, James JE. The role of polygenic risk scores in breast cancer risk perception and decision-making. J Community Genet. 2023 Oct; 14(5):489-501. View in PubMed
- Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME. Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population. NPJ Genom Med. 2023 May 26; 8(1):10. View in PubMed
- Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N. Diagnostic Yield of Exome Sequencing in a Diverse Pediatric and Prenatal Population is not Associated with Genetic Ancestry. medRxiv. 2023 May 24. View in PubMed
- Liao WW, Asri M, Ebler J, Doerr D, Haukness M, Hickey G, Lu S, Lucas JK, Monlong J, Abel HJ, Buonaiuto S, Chang XH, Cheng H, Chu J, Colonna V, Eizenga JM, Feng X, Fischer C, Fulton RS, Garg S, Groza C, Guarracino A, Harvey WT, Heumos S, Howe K, Jain M, Lu TY, Markello C, Martin FJ, Mitchell MW, Munson KM, Mwaniki MN, Novak AM, Olsen HE, Pesout T, Porubsky D, Prins P, Sibbesen JA, Sirén J, Tomlinson C, Villani F, Vollger MR, Antonacci-Fulton LL, Baid G, Baker CA, Belyaeva A, Billis K, Carroll A, Chang PC, Cody S, Cook DE, Cook-Deegan RM, Cornejo OE, Diekhans M, Ebert P, Fairley S, Fedrigo O, Felsenfeld AL, Formenti G, Frankish A, Gao Y, Garrison NA, Giron CG, Green RE, Haggerty L, Hoekzema K, Hourlier T, Ji HP, Kenny EE, Koenig BA, Kolesnikov A, Korbel JO, Kordosky J, Koren S, Lee H, Lewis AP, Magalhães H, Marco-Sola S, Marijon P, McCartney A, McDaniel J, Mountcastle J, Nattestad M, Nurk S, Olson ND, Popejoy AB, Puiu D, Rautiainen M, Regier AA, Rhie A, Sacco S, Sanders AD, Schneider VA, Schultz BI, Shafin K, Smith MW, Sofia HJ, Abou Tayoun AN, Thibaud-Nissen F, Tricomi FF, Wagner J, Walenz B, Wood JMD, Zimin AV, Bourque G, Chaisson MJP, Flicek P, Phillippy AM, Zook JM, Eichler EE, Haussler D, Wang T, Jarvis ED, Miga KH, Garrison E, Marschall T, Hall IM, Li H, Paten B. A draft human pangenome reference. Nature. 2023 May; 617(7960):312-324. View in PubMed
- Mary Norton, Billie Lianoglou, Matthew Shear, Sara Ackerman, Nuriye Sahin-Holodlugil, Mark Kvale, Jessica Van Ziffle, W. Patrick Devine, Ugur Hodoglugil, Pierre-Marie Martin, Barbara Koenig, Neil Risch, Pui-Yan Kwok, Anne Slavotinek, Teresa Sparks. O40: Clinical utility of prenatal exome sequencing in a diverse cohort*. . 2023 Jan 1; 1(1):100647. View in PubMed
- Teresa Sparks, Billie Lianoglou, Nuriye Sahin-Holodlugil, Mark Kvale, Jessica Van Ziffle, W. Patrick Devine, Ugur Hodoglugil, Pierre-Marie Martin, Barbara Koenig, Pui-Yan Kwok, Sara Ackerman, Anne Slavotinek, Neil Risch, Mary Norton. O41: Genes associated with disease in fetuses compared to children: Exome sequencing in a large pediatric and prenatal cohort. . 2023 Jan 1; 1(1):100648. View in PubMed
- Outram SM, Ackerman SL, Norstad M, Koenig B. The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective. New Genet Soc. 2022; 41(3):216-226. View in PubMed
- Lázaro-Muñoz G, Pham MT, Muñoz KA, Kostick-Quenet K, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P. Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost. Brain Stimul. 2022 Sep-Oct; 15(5):1029-1036. View in PubMed
- James JE, Riddle L, Caruncho M, Koenig BA, Joseph G. A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial. J Genet Couns. 2022 Dec; 31(6):1421-1433. View in PubMed
- Simon M. Outram, Sara L. Ackerman, Matthew Norstad, Barbara Koenig. The challenge of recruiting diverse populations into health research: an embedded social science perspective. New Genetics and Society. 2022 Jul 3; 41(3):216-226. View in PubMed
- Matthew Zook, Solon Barocas, Danah Boyd, Kate Crawford, Emily Keller, Seeta Peña Gangadharan, Alyssa Goodman, Rachelle Hollander, Barbara A. Koenig, Jacob Metcalf, Arvind Narayanan, Alondra Nelson, Frank Pasquale. Ten Simple Rules for Responsible Big Data Research. . 2022 May 21; 521-534. View in PubMed
- Wang T, Antonacci-Fulton L, Howe K, Lawson HA, Lucas JK, Phillippy AM, Popejoy AB, Asri M, Carson C, Chaisson MJP, Chang X, Cook-Deegan R, Felsenfeld AL, Fulton RS, Garrison EP, Garrison NA, Graves-Lindsay TA, Ji H, Kenny EE, Koenig BA, Li D, Marschall T, McMichael JF, Novak AM, Purushotham D, Schneider VA, Schultz BI, Smith MW, Sofia HJ, Weissman T, Flicek P, Li H, Miga KH, Paten B, Jarvis ED, Hall IM, Eichler EE, Haussler D, Human Pangenome Reference Consortium. The Human Pangenome Project: a global resource to map genomic diversity. Nature. 2022 04; 604(7906):437-446. View in PubMed
- Zuk P, Sanchez CE, Kostick-Quenet K, Muñoz KA, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Outram S, Koenig BA, McGuire AL, Lázaro-Muñoz G. Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation. AJOB Neurosci. 2023 Jul-Sep; 14(3):287-299. View in PubMed
- Kostick-Quenet K, Kalwani L, Koenig B, Torgerson L, Sanchez C, Munoz K, Hsu RL, Sierra-Mercado D, Robinson JO, Outram S, Pereira S, McGuire A, Zuk P, Lazaro-Munoz G. Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement. Front Hum Neurosci. 2022; 16:813922. View in PubMed
- Rego S, Hoban H, Outram S, Zamora AN, Chen F, Sahin-Hodoglugil N, Anguiano B, Norstad M, Yip T, Lianoglou B, Sparks TN, Norton ME, Koenig BA, Slavotinek AM, Ackerman SL. Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach. Genet Med. 2022 06; 24(6):1206-1216. View in PubMed
- Brown JEH, Koenig BA. How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician? Am J Bioeth. 2022 02; 22(2):1-3. View in PubMed
- Gordon DR, Koenig BA. "If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens. New Genet Soc. 2022; 41(1):23-46. View in PubMed
- Brown JEH, Koenig BA. Ethical, Legal, and Social Implications of Fetal Gene Therapy. Clin Obstet Gynecol. 2021 12 01; 64(4):933-940. View in PubMed
- Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL. The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research. Genet Med. 2022 02; 24(2):410-418. View in PubMed
- MacKenzie TC, Amid A, Angastiniotis M, Butler C, Gilbert S, Gonzalez J, Keller RL, Kharbanda S, Kirby-Allen M, Koenig BA, Kyono W, Lal A, Lianoglou BR, Norton ME, Ogasawara KK, Panchalee T, Rosner M, Schwab M, Thompson A, Waye JS, Vichinsky E. Consensus statement for the perinatal management of patients with α thalassemia major. Blood Adv. 2021 12 28; 5(24):5636-5639. View in PubMed
- James JE, Riddle L, Koenig BA, Joseph G. The limits of personalization in precision medicine: Polygenic risk scores and racial categorization in a precision breast cancer screening trial. PLoS One. 2021; 16(10):e0258571. View in PubMed
- Smith HS, Morain SR, Robinson JO, Canfield I, Malek J, Rubanovich CK, Bloss CS, Ackerman SL, Biesecker B, Brothers KB, Goytia CN, Horowitz CR, Knight SJ, Koenig B, Kraft SA, Outram S, Rini C, Shipman KJ, Waltz M, Wilfond B, McGuire AL. Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development. Patient. 2022 05; 15(3):317-328. View in PubMed
- Outram S, Muñoz KA, Kostick-Quenet K, Sanchez CE, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman WK, McGuire AL, Zuk P, Lázaro-Muñoz G. Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research. Front Neurosci. 2021; 15:734182. View in PubMed
- Gutierrez AM, Robinson JO, Outram SM, Smith HS, Kraft SA, Donohue KE, Biesecker BB, Brothers KB, Chen F, Hailu B, Hindorff LA, Hoban H, Hsu RL, Knight SJ, Koenig BA, Lewis KL, Lich KH, O'Daniel JM, Okuyama S, Tomlinson GE, Waltz M, Wilfond BS, Ackerman SL, Majumder MA. Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium. J Clin Transl Sci. 2021; 5(1):e193. View in PubMed
- Swanson K, Sparks TN, Lianoglou BR, Chen F, Downum S, Patel S, Rego S, Yip T, Van Ziffle J, Koenig BA, Slavotinek AM, Norton ME. Preference for secondary findings in prenatal and pediatric exome sequencing. Prenat Diagn. 2022 05; 42(6):753-761. View in PubMed
- McInnes G, Sharo AG, Koleske ML, Brown JEH, Norstad M, Adhikari AN, Wang S, Brenner SE, Halpern J, Koenig BA, Magnus DC, Gallagher RC, Giacomini KM, Altman RB. Opportunities and challenges for the computational interpretation of rare variation in clinically important genes. Am J Hum Genet. 2021 04 01; 108(4):535-548. View in PubMed
- Mary E. Norton, Billie R. Lianoglou, Jessica van Ziffle, Amanda Faubel, Sarah Downum, Anne M. Slavotinek, Pui-Yan Kwok, Barbara Koenig, Neil Risch, Patrick Devine, Teresa N. Sparks. 1027 Diagnostic yield of exome sequencing in prenatal diagnosis. American Journal of Obstetrics and Gynecology. 2021 Feb 1; 224(2):s635-s636. View in PubMed
- O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W. Toward better governance of human genomic data. Nat Genet. 2021 01; 53(1):2-8. View in PubMed
- Zuk P, Sanchez CE, Kostick K, Torgerson L, Muñoz KA, Hsu R, Kalwani L, Sierra-Mercado D, Robinson JO, Outram S, Koenig BA, Pereira S, McGuire AL, Lázaro-Muñoz G. Researcher Perspectives on Data Sharing in Deep Brain Stimulation. Front Hum Neurosci. 2020; 14:578687. View in PubMed
- Muñoz KA, Kostick K, Sanchez C, Kalwani L, Torgerson L, Hsu R, Sierra-Mercado D, Robinson JO, Outram S, Koenig BA, Pereira S, McGuire A, Zuk P, Lázaro-Muñoz G. Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials. Front Hum Neurosci. 2020; 14:578695. View in PubMed
- Erikainen S, Friesen P, Rand L, Jongsma K, Dunn M, Sorbie A, McCoy M, Bell J, Burgess M, Chen H, Chico V, Cunningham-Burley S, Darbyshire J, Dawson R, Evans A, Fahy N, Finlay T, Frith L, Goldenberg A, Hinton L, Hoppe N, Hughes N, Koenig B, Lignou S, McGowan M, Parker M, Prainsack B, Shabani M, Staunton C, Thompson R, Varnai K, Vayena E, Williams O, Williamson M, Chan S, Sheehan M. Public involvement in the governance of population-level biomedical research: unresolved questions and future directions. J Med Ethics. 2020 Oct 06. View in PubMed
- Adhikari AN, Gallagher RC, Wang Y, Currier RJ, Amatuni G, Bassaganyas L, Chen F, Kundu K, Kvale M, Mooney SD, Nussbaum RL, Randi SS, Sanford J, Shieh JT, Srinivasan R, Sunderam U, Tang H, Vaka D, Zou Y, Koenig BA, Kwok PY, Risch N, Puck JM, Brenner SE. The role of exome sequencing in newborn screening for inborn errors of metabolism. Nat Med. 2020 09; 26(9):1392-1397. View in PubMed
- Popejoy AB, Crooks KR, Fullerton SM, Hindorff LA, Hooker GW, Koenig BA, Pino N, Ramos EM, Ritter DI, Wand H, Wright MW, Yudell M, Zou JY, Plon SE, Bustamante CD, Ormond KE, Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group. Clinical Genetics Lacks Standard Definitions and Protocols for the Collection and Use of Diversity Measures. Am J Hum Genet. 2020 07 02; 107(1):72-82. View in PubMed
- Stout J, Kumbamu A, Tilburt J, Fernandez C, Geller G, Koenig B, Lenz HJ, Jatoi A. Conversations on Cancer Chemotherapy Cessation in Patients With Advanced Cancer: Qualitative Findings From a Multi-Institutional Study. Am J Hosp Palliat Care. 2021 Feb; 38(2):175-179. View in PubMed
- Teresa N. Sparks, Flavia Chen, Shannon Rego, Billie R. Lianoglou, Sachi Patel, Anne M. Slavotinek, Barbara Koenig, Mary E. Norton. 904: Agreement to secondary findings with exome sequencing in pre- and postnatal settings. American Journal of Obstetrics and Gynecology. 2020 Jan 1; 222(1):s561. View in PubMed
- Milko LV, Chen F, Chan K, Brower AM, Agrawal PB, Beggs AH, Berg JS, Brenner SE, Holm IA, Koenig BA, Parad RB, Powell CM, Kingsmore SF. FDA oversight of NSIGHT genomic research: the need for an integrated systems approach to regulation. NPJ Genom Med. 2019; 4:32. View in PubMed
- Childerhose JE, Finnila CR, Yu JH, Koenig BA, McEwen J, Berg SL, Wilfond BS, Appelbaum PS, Brothers KB. Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some. Ethics Hum Res. 2019 Sep; 41(5):2-15. View in PubMed
- Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS, Clinical Sequencing Exploratory Research (CSER) Consortium Informed Consent and Governance Working G. Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium. Per Med. 2019 07; 16(4):325-333. View in PubMed
- Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS. Hospital and Health System Policies Concerning the California End of Life Option Act. J Palliat Med. 2020 01; 23(1):60-66. View in PubMed
- Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS. Hospital Responses to the End of Life Option Act: Implementation of Aid in Dying in California. JAMA Intern Med. 2019 07 01; 179(7):985-987. View in PubMed
- Tilburt J, Yost KJ, Lenz HJ, Zúñiga ML, O'Byrne T, Branda ME, Leppin AL, Kimball B, Fernandez C, Jatoi A, Barwise A, Kumbamu A, Montori V, Koenig BA, Geller G, Larson S, Roter DL. A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context. Oncologist. 2019 11; 24(11):e1180-e1189. View in PubMed
- Horowitz CR, Orlando LA, Slavotinek AM, Peterson J, Angelo F, Biesecker B, Bonham VL, Cameron LD, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hindorff LA, Jarvik GP, Kaufman D, Kenny EE, Knight SJ, Koenig BA, Korf BR, Madden E, McGuire AL, Ou J, Wasserstein MP, Robinson M, Leventhal H, Sanderson SC. The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research. Am J Hum Genet. 2019 06 06; 104(6):1088-1096. View in PubMed
- Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J. Consent insufficient for data release. Science. 2019 05 03; 364(6439):445-446. View in PubMed
- Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA, Koenig BA, McEwen JE, Wilfond BS, Brothers K, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Rethinking the "open future" argument against predictive genetic testing of children. Genet Med. 2019 10; 21(10):2190-2198. View in PubMed
- Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA. Characterizing the Biomedical Data-Sharing Landscape. J Law Med Ethics. 2019 03; 47(1):21-30. View in PubMed
- Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire AL. Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):70-87. View in PubMed
- McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):12-20. View in PubMed
- Majumder MA, Bollinger JM, Villanueva AG, Deverka PA, Koenig BA. The Role of Participants in a Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):51-61. View in PubMed
- Bryant J, Markes A, Woolridge T, Cerruti D, Dzeng E, Koenig B, Diab M. Concurrent and Overlapping Surgery: Perspectives From Parents of Adolescents Undergoing Spinal Posterior Instrumented Fusion for Idiopathic Scoliosis. Spine (Phila Pa 1976). 2019 Jan 01; 44(1):53-59. View in PubMed
- Gordon DR, Radecki Breitkopf C, Robinson M, Petersen WO, Egginton JS, Chaffee KG, Petersen GM, Wolf SM, Koenig BA. Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences. AJOB Empir Bioeth. 2019 Jan-Mar; 10(1):1-22. View in PubMed
- Popejoy AB, Ritter DI, Crooks K, Currey E, Fullerton SM, Hindorff LA, Koenig B, Ramos EM, Sorokin EP, Wand H, Wright MW, Zou J, Gignoux CR, Bonham VL, Plon SE, Bustamante CD, Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group (ADWG). The clinical imperative for inclusivity: Race, ethnicity, and ancestry (REA) in genomics. Hum Mutat. 2018 11; 39(11):1713-1720. View in PubMed
- Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA, CSER consortium, Plon SE, Jarvik GP. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. Am J Hum Genet. 2018 09 06; 103(3):319-327. View in PubMed
- Kumbamu A, Geller G, Leppin A, Fernandez C, Tilburt J, Koenig B. Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology. J Altern Complement Med. 2018 Sep/Oct; 24(9-10):996-1002. View in PubMed
- Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS, members of the CSER Actionability and Return of Results Working Group. Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience. Mol Genet Genomic Med. 2018 11; 6(6):898-909. View in PubMed
- Wehner MR, Dalma N, Landefeld C, Pare-Anastasiadou A, Koutelidas I, Chren MM, Aji N, Teng CE, Koenig BA, Tang J, Covinsky K, Linos E. Natural history of lesions suspicious for basal cell carcinoma in older adults in Ikaria, Greece. Br J Dermatol. 2018 09; 179(3):767-768. View in PubMed
- Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA, members of the NSIGHT Ethics and Policy Advisory Board. Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies. Hastings Cent Rep. 2018 Jul; 48 Suppl 2:S2-S6. View in PubMed
- Dingel MJ, Ostergren J, Koenig BA, McCormick J. "Why did I get that part of you?" Understanding addiction genetics through family history. Public Underst Sci. 2019 01; 28(1):53-67. View in PubMed
- Radecki Breitkopf C, Wolf SM, Chaffee KG, Robinson ME, Lindor NM, Gordon DR, Koenig BA, Petersen GM. Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners. J Empir Res Hum Res Ethics. 2018 07; 13(3):295-304. View in PubMed
- Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants. J Law Med Ethics. 2018 03; 46(1):87-109. View in PubMed
- Kimball BC, Geller G, Warsame R, Kumbamu A, Jatoi A, Koenig B, Tilburt JC. Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years. Oncologist. 2018 06; 23(6):639-641. View in PubMed
- Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A. Including all voices in international data-sharing governance. Hum Genomics. 2018 03 07; 12(1):13. View in PubMed
- Barbara Koenig, Laura Petrillo, Cindy Cain, Felicia Cohn, Judy Thomas. California's End of Life Option Act: What Can We Learn from One Year of Legalization? (TH312). Journal of Pain and Symptom Management. 2018 Feb 1; 55(2):565. View in PubMed
- Kao AC, Jager AJ, Koenig BA, Moller AC, Tutty MA, Williams GC, Wright SM. Physician Perception of Pay Fairness and its Association with Work Satisfaction, Intent to Leave Practice, and Personal Health. J Gen Intern Med. 2018 06; 33(6):812-817. View in PubMed
- Ackerman SL, Koenig BA. Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories. AJOB Empir Bioeth. 2018 Jan-Mar; 9(1):48-57. View in PubMed
- Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL. Creating a data resource: what will it take to build a medical information commons? Genome Med. 2017 09 22; 9(1):84. View in PubMed
- Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med. 2018 04; 20(5):545-553. View in PubMed
- Dingel MJ, Ostergren J, Heaney K, Koenig BA, McCormick J. "I don't have to know why it snows, I just have to shovel it!": Addiction Recovery, Genetic Frameworks, and Biological Citizenship. Biosocieties. 2017 Dec; 12(4):568-587. View in PubMed
- L. Forbes, L. Petrillo, E. Dzeng, K.L. Harrison, B. Scribner, B. Koenig. RESPONDING TO THE END-OF-LIFE OPTION ACT IN CALIFORNIA. Innovation in Aging. 2017 Jul 1; 1(suppl_1):505-506. View in PubMed
- Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS, PGen Study Group. Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 06; 95(2):291-318. View in PubMed
- Petrillo LA, Dzeng E, Harrison KL, Forbes L, Scribner B, Koenig BA. How California Prepared for Implementation of Physician-Assisted Death: A Primer. Am J Public Health. 2017 06; 107(6):883-888. View in PubMed
- Zook M, Barocas S, Boyd D, Crawford K, Keller E, Gangadharan SP, Goodman A, Hollander R, Koenig BA, Metcalf J, Narayanan A, Nelson A, Pasquale F. Ten simple rules for responsible big data research. PLoS Comput Biol. 2017 03; 13(3):e1005399. View in PubMed
- Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D. Community recommendations on biobank governance: Results from a deliberative community engagement in California. PLoS One. 2017; 12(2):e0172582. View in PubMed
- Laura Petrillo, Eric Widera, Elizabeth Dzeng, Krista Harrison, Lindsay Forbes, Barbara Koenig, Ben Scribner. How Should Palliative Care Be Involved in the Response to Physician Assisted Dying in California? Intimately: Perspectives from a Statewide Conference (S795). Journal of Pain and Symptom Management. 2017 Feb 1; 53(2):463. View in PubMed
- De Clercq E, Kaye J, Wolf SM, Koenig BA, Elger BS. Returning Results in Biobank Research: Global Trends and Solutions. Genet Test Mol Biomarkers. 2017 Mar; 21(3):128-131. View in PubMed
- Carey EC, Dose AM, Humeniuk KM, Kuan YC, Hicks AD, Ottenberg AL, Tilburt JC, Koenig B. The Experience of Hospital Death: Assessing the Quality of Care at an Academic Medical Center. Am J Hosp Palliat Care. 2018 Feb; 35(2):189-197. View in PubMed
- Han PKJ, Umstead KL, Bernhardt BA, Green RC, Joffe S, Koenig B, Krantz I, Waterston LB, Biesecker LG, Biesecker BB. A taxonomy of medical uncertainties in clinical genome sequencing. Genet Med. 2017 08; 19(8):918-925. View in PubMed
- Berg JS, Agrawal PB, Bailey DB, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise AL. Newborn Sequencing in Genomic Medicine and Public Health. Pediatrics. 2017 Feb; 139(2). View in PubMed
- O'Doherty KC, Christofides E, Yen J, Bentzen HB, Burke W, Hallowell N, Koenig BA, Willison DJ. If you build it, they will come: unintended future uses of organised health data collections. BMC Med Ethics. 2016 09 06; 17(1):54. View in PubMed
- Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH, CSER Consortium. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 07 07; 99(1):246. View in PubMed
- Roter DL, Yost KJ, O'Byrne T, Branda M, Leppin A, Kimball B, Fernandez C, Jatoi A, Kumbamu A, Montori V, Koenig B, Geller G, Larson S, Tilburt J. Communication predictors and consequences of Complementary and Alternative Medicine (CAM) discussions in oncology visits. Patient Educ Couns. 2016 09; 99(9):1519-25. View in PubMed
- Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH, CSER Consortium. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 06 02; 98(6):1051-1066. View in PubMed
- Joseph G, Chen F, Harris-Wai J, Puck JM, Young C, Koenig BA. Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing. Pediatrics. 2016 Jan; 137 Suppl 1:S36-46. View in PubMed
- McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice. Pediatrics. 2015 Oct; 136(4):e974-82. View in PubMed
- Frye MA, Doederlein A, Koenig B, McElroy SL, Nassan M, Seymour LR, Biernacka JM, Daniels AS. National survey and community advisory board development for a bipolar disorder biobank. Bipolar Disord. 2015 Sep; 17(6):598-605. View in PubMed
- Dingel MJ, Ostergren J, McCormick JB, Hammer R, Koenig BA. The media and behavioral genetics: Alternatives coexisting with addiction genetics. Sci Technol Human Values. 2015 Jul 01; 40(4):459-486. View in PubMed
- Ostergren JE, Dingel MJ, McCormick JB, Koenig BA. Unwarranted optimism in media portrayals of genetic research on addiction overshadows critical ethical and social concerns. J Health Commun. 2015; 20(5):555-65. View in PubMed
- Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D, in collaboration with UC BRAID. EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California. Clin Transl Sci. 2015 Aug; 8(4):362-6. View in PubMed
- Dose AM, Carey EC, Rhudy LM, Chiu Y, Frimannsdottir K, Ottenberg AL, Koenig BA. Dying in the Hospital: Perspectives of family members. J Palliat Care. 2015; 31(1):13-20. View in PubMed
- Garrett SB, Dohan D, Koenig BA. Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California. Am J Bioeth. 2015; 15(9):56-7. View in PubMed
- Wolf SM, Burke W, Koenig BA. Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. J Law Med Ethics. 2015; 43(3):486-501. View in PubMed
- Breitkopf CR, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA. Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank. J Law Med Ethics. 2015; 43(3):464-75. View in PubMed
- Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations. J Law Med Ethics. 2015; 43(3):440-63. View in PubMed
- Koenig BA. Have we asked too much of consent? Hastings Cent Rep. 2014 Jul-Aug; 44(4):33-4. View in PubMed
- Ostergren JE, Hammer RR, Dingel MJ, Koenig BA, McCormick JB. Challenges in translational research: the views of addiction scientists. PLoS One. 2014; 9(4):e93482. View in PubMed
- Chris Feudtner, Jeremy Sugarman, Barbara A. Koenig, Peter A. Ubel, Richard F. Ittenbach, Laura Weiss Roberts, Laurence B. McCullough. AJOB Empirical Bioethics: A Home for Empirical Bioethics Scholarship. AJOB Empirical Bioethics. 2014 Jan 1; 5(1):1-2. View in PubMed
- Kimball BC, James KM, Yost KJ, Fernandez CA, Kumbamu A, Leppin AL, Robinson ME, Geller G, Roter DL, Larson SM, Lenz HJ, Garcia AA, Braddock CH, Jatoi A, de Nuncio ML, Montori VM, Koenig BA, Tilburt JC. Listening in on difficult conversations: an observational, multi-center investigation of real-time conversations in medical oncology. BMC Cancer. 2013 Oct 04; 13:455. View in PubMed
- Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ. Ethical, legal, and social implications of incorporating genomic information into electronic health records. Genet Med. 2013 Oct; 15(10):810-6. View in PubMed
- Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB. Stakeholder engagement: a key component of integrating genomic information into electronic health records. Genet Med. 2013 Oct; 15(10):792-801. View in PubMed
- Olson JE, Ryu E, Johnson KJ, Koenig BA, Maschke KJ, Morrisette JA, Liebow M, Takahashi PY, Fredericksen ZS, Sharma RG, Anderson KS, Hathcock MA, Carnahan JA, Pathak J, Lindor NM, Beebe TJ, Thibodeau SN, Cerhan JR. The Mayo Clinic Biobank: a building block for individualized medicine. Mayo Clin Proc. 2013 Sep; 88(9):952-62. View in PubMed
- McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. Point-counterpoint. Ethics and genomic incidental findings. Science. 2013 May 31; 340(6136):1047-8. View in PubMed
- Koenig BA. Fixing research subjects protection in the United States: moving beyond consent. Mayo Clin Proc. 2013 May; 88(5):428-30. View in PubMed
- Ridgeway JL, Han LC, Olson JE, Lackore KA, Koenig BA, Beebe TJ, Ziegenfuss JY. Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank? Public Health Genomics. 2013; 16(3):118-26. View in PubMed
- Hammer R, Dingel M, Ostergren J, Partridge B, McCormick J, Koenig BA. Addiction: Current Criticism of the Brain Disease Paradigm. AJOB Neurosci. 2013; 4(3):27-32. View in PubMed
- Koenig BA. Addiction science, meet translational genomics. Addiction. 2012 Dec; 107(12):2079-80. View in PubMed
- Hammer RR, Dingel MJ, Ostergren JE, Nowakowski KE, Koenig BA. The experience of addiction as told by the addicted: incorporating biological understandings into self-story. Cult Med Psychiatry. 2012 Dec; 36(4):712-34. View in PubMed
- Molly J. Dingel, Rachel Hammer, Jenny E. Ostergren, Jennifer B. McCormick, Barbara A. Koenig. Chronic Addiction, Compulsion, and the Empirical Evidence. AJOB Neuroscience. 2012 Apr 1; 3(2):58-59. View in PubMed
- Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med. 2012 Apr; 14(4):361-84. View in PubMed
- Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP. Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network. Genet Med. 2012 Apr; 14(4):424-31. View in PubMed
- Dingel MJ, Karkazis K, Koenig BA. Framing Nicotine Addiction as a "Disease of the Brain": Social and Ethical Consequences. Soc Sci Q. 2012 Dec 01; 92(5):1363-1388. View in PubMed
- James KM, Cowl CT, Tilburt JC, Sinicrope PS, Robinson ME, Frimannsdottir KR, Tiedje K, Koenig BA. Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic. Mayo Clin Proc. 2011 Oct; 86(10):933-40. View in PubMed
- Mueller PS, Ottenberg AL, Hayes DL, Koenig BA. "I felt like the angel of death": role conflicts and moral distress among allied professionals employed by the US cardiovascular implantable electronic device industry. J Interv Card Electrophysiol. 2011 Dec; 32(3):253-61. View in PubMed
- Kramer DB, Ottenberg AL, Gerhardson S, Mueller LA, Kaufman SR, Koenig BA, Mueller PS. "Just Because We Can Doesn't Mean We Should": views of nurses on deactivation of pacemakers and implantable cardioverter-defibrillators. J Interv Card Electrophysiol. 2011 Dec; 32(3):243-52. View in PubMed
- Dingel MJ, Hicks AD, Robinson ME, Koenig BA. Integrating genetic studies of nicotine addiction into public health practice: stakeholder views on challenges, barriers and opportunities. Public Health Genomics. 2012; 15(1):46-55. View in PubMed
- McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience. Genome Res. 2011 Jul; 21(7):1001-7. View in PubMed
- Ottenberg AL, Wu JT, Poland GA, Jacobson RM, Koenig BA, Tilburt JC. Vaccinating health care workers against influenza: the ethical and legal rationale for a mandate. Am J Public Health. 2011 Feb; 101(2):212-6. View in PubMed
- Kaufman SR, Mueller PS, Ottenberg AL, Koenig BA. Ironic technology: Old age and the implantable cardioverter defibrillator in US health care. Soc Sci Med. 2011 Jan; 72(1):6-14. View in PubMed
- Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL, Consent and Community Consultation Working Group of the eMERGE Consortium. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genet Med. 2010 Oct; 12(10):616-20. View in PubMed
- Orme NM, Fletcher JG, Siddiki HA, Harmsen WS, O'Byrne MM, Port JD, Tremaine WJ, Pitot HC, McFarland EG, Robinson ME, Koenig BA, King BF, Wolf SM. Incidental findings in imaging research: evaluating incidence, benefit, and burden. Arch Intern Med. 2010 Sep 27; 170(17):1525-32. View in PubMed
- Gundle KR, Dingel MJ, Koenig BA. 'To prove this is the industry's best hope': big tobacco's support of research on the genetics of nicotine addiction. Addiction. 2010 Jun; 105(6):974-83. View in PubMed
- Caulfield T, Fullerton SM, Ali-Khan SE, Arbour L, Burchard EG, Cooper RS, Hardy BJ, Harry S, Hyde-Lay R, Kahn J, Kittles R, Koenig BA, Lee SS, Malinowski M, Ravitsky V, Sankar P, Scherer SW, Séguin B, Shickle D, Suarez-Kurtz G, Daar AS. Race and ancestry in biomedical research: exploring the challenges. Genome Med. 2009 Jan 21; 1(1):8. View in PubMed
- Tilburt JC, Mueller PS, Ottenberg AL, Poland GA, Koenig BA. Facing the challenges of influenza in healthcare settings: the ethical rationale for mandatory seasonal influenza vaccination and its implications for future pandemics. Vaccine. 2008 Sep 12; 26 Suppl 4:D27-30. View in PubMed
- Lee SS, Mountain J, Koenig B, Altman R, Brown M, Camarillo A, Cavalli-Sforza L, Cho M, Eberhardt J, Feldman M, Ford R, Greely H, King R, Markus H, Satz D, Snipp M, Steele C, Underhill P. The ethics of characterizing difference: guiding principles on using racial categories in human genetics. Genome Biol. 2008; 9(7):404. View in PubMed
- Griffin MD, Koenig BA, Schears RM. Topics in transplant ethics. Transplant Rev (Orlando). 2008 Jul; 22(3):151-3. View in PubMed
- Siddiki H, Fletcher JG, McFarland B, Dajani N, Orme N, Koenig B, Strobel M, Wolf SM. Incidental findings in CT colonography: literature review and survey of current research practice. J Law Med Ethics. 2008; 36(2):320-31, 213. View in PubMed
- Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS. Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics. 2008; 36(2):219-48, 211. View in PubMed
- Mrazek M, Koenig B, Skime M, Snyder K, Hook C, Black J, Mrazek D. Assessing attitudes about genetic testing as a component of continuing medical education. Acad Psychiatry. 2007 Nov-Dec; 31(6):447-51. View in PubMed
- Mueller PS, Montori VM, Bassler D, Koenig BA, Guyatt GH. Ethical issues in stopping randomized trials early because of apparent benefit. Ann Intern Med. 2007 Jun 19; 146(12):878-81. View in PubMed
- Starks H, Back AL, Pearlman RA, Koenig BA, Hsu C, Gordon JR, Bharucha AJ. Family member involvement in hastened death. Death Stud. 2007 Feb; 31(2):105-30. View in PubMed
- Mueller PS, Koenig BA. Systematic review of ethics consultation: a route to curriculum development in post-graduate medical education. Am J Bioeth. 2006 Jul-Aug; 6(4):21-3. View in PubMed
- Caron L, Karkazis K, Raffin TA, Swan G, Koenig BA. Nicotine addiction through a neurogenomic prism: ethics, public health, and smoking. Nicotine Tob Res. 2005 Apr; 7(2):181-97. View in PubMed
- Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha AJ, Koenig BA, Battin MP. Motivations for physician-assisted suicide. J Gen Intern Med. 2005 Mar; 20(3):234-9. View in PubMed
- Illes J, Kann D, Karetsky K, Letourneau P, Raffin TA, Schraedley-Desmond P, Koenig BA, Atlas SW. Advertising, patient decision making, and self-referral for computed tomographic and magnetic resonance imaging. Arch Intern Med. 2004 Dec 13-27; 164(22):2415-9. View in PubMed
- Sankar P, Cho MK, Condit CM, Hunt LM, Koenig B, Marshall P, Lee SS, Spicer P. Genetic research and health disparities. JAMA. 2004 Jun 23; 291(24):2985-9. View in PubMed
- Marshall P, Koenig B. Accounting for culture in a globalized bioethics. J Law Med Ethics. 2004; 32(2):252-66, 191. View in PubMed
- Swan GE, Hudmon KS, Jack LM, Hemberger K, Carmelli D, Khroyan TV, Ring HZ, Hops H, Andrews JA, Tildesley E, McBride D, Benowitz N, Webster C, Wilhelmsen KC, Feiler HS, Koenig B, Caron L, Illes J, Cheng LS. Environmental and genetic determinants of tobacco use: methodology for a multidisciplinary, longitudinal family-based investigation. Cancer Epidemiol Biomarkers Prev. 2003 Oct; 12(10):994-1005. View in PubMed
- Illes J, Fan E, Koenig BA, Raffin TA, Kann D, Atlas SW. Self-referred whole-body CT imaging: current implications for health care consumers. Radiology. 2003 Aug; 228(2):346-51. View in PubMed
- Koenig BA, Back AL, Crawley LM. Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects. J Pain Symptom Manage. 2003 Apr; 25(4):S43-52. View in PubMed
- Uhlmann WR, Bennett R, Botkin JR, Botstein D, Boughman JA, Chakravarti A, Clayton EW, Kahn J, Koenig B, Murray TH, Olson MV, Rowley J, Terry S, Valle D. Planning the genome institute's future. Science. 2003 Mar 07; 299(5612):1515; author reply 1515. View in PubMed
- Koenig BA. Dead donors and the "shortage" of human organs: are we missing the point? Am J Bioeth. 2003; 3(1):26-7. View in PubMed
- Drought TS, Koenig BA. "Choice" in end-of-life decision making: researching fact or fiction? Gerontologist. 2002 Oct; 42 Spec No 3:114-28. View in PubMed
- Crawley LM, Marshall PA, Lo B, Koenig BA, End-of-Life Care Consensus Panel. Strategies for culturally effective end-of-life care. Ann Intern Med. 2002 May 07; 136(9):673-9. View in PubMed
- Koenig BA, Greely H, Schacter DL, Winslade WJ, Mobley W. Brain science and social policy. Cerebrum. 2002; 4(3):59-62. View in PubMed
- Lee SS, Mountain J, Koenig BA. The meanings of "race" in the new genomics: implications for health disparities research. Yale J Health Policy Law Ethics. 2001; 1:33-75. View in PubMed
- Koenig BA. Why not grant primacy to the family? Am J Bioeth. 2001; 1(3):33-4. View in PubMed
- Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, Hornberger JC, Raffin TA. Ethical decision making and patient autonomy: a comparison of physicians and patients in Japan and the United States. Chest. 2000 Oct; 118(4):1172-82. View in PubMed
- Press N, Fishman JR, Koenig BA. Collective fear, individualized risk: the social and cultural context of genetic testing for breast cancer. Nurs Ethics. 2000 May; 7(3):237-49. View in PubMed
- Lynn J, Arkes HR, Stevens M, Cohn F, Koenig B, Fox E, Dawson NV, Phillips RS, Hamel MB, Tsevat J. Rethinking fundamental assumptions: SUPPORT's implications for future reform. Study to Understand Prognoses and Preferences and Risks of Treatment. J Am Geriatr Soc. 2000 05; 48(S1):S214-21. View in PubMed
- Daly MB, Offit K, Li F, Glendon G, Yaker A, West D, Koenig B, McCredie M, Venne V, Nayfield S, Seminara D. Participation in the cooperative family registry for breast cancer studies: issues of informed consent. J Natl Cancer Inst. 2000 Mar 15; 92(6):452-6. View in PubMed
- Jubelirer SJ, Koenig BA, Bates MC. Acute profound thrombocytopenia following C7E3 Fab (Abciximab) therapy: case reports, review of the literature and implications for therapy. Am J Hematol. 1999 Jul; 61(3):205-8. View in PubMed
- Braune B, Muir D, DeMarch B, Gamberg M, Poole K, Currie R, Dodd M, Duschenko W, Eamer J, Elkin B, Evans M, Grundy S, Hebert C, Johnstone R, Kidd K, Koenig B, Lockhart L, Marshall H, Reimer K, Sanderson J, Shutt L. Spatial and temporal trends of contaminants in Canadian Arctic freshwater and terrestrial ecosystems: a review. Sci Total Environ. 1999 Jun 01; 230(1-3):145-207. View in PubMed
- McConnell LM, Koenig BA, Greely HT, Raffin TA. Genetic testing and Alzheimer disease: recommendations of the Stanford Program in Genomics, Ethics, and Society. Genet Test. 1999; 3(1):3-12. View in PubMed
- Koenig BA, Silverberg HL. Understanding probabilistic risk in predisposition genetic testing for Alzheimer disease. Genet Test. 1999; 3(1):55-63. View in PubMed
- Ersek M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig BA. Multicultural considerations in the use of advance directives. Oncol Nurs Forum. 1998 Nov-Dec; 25(10):1683-90. View in PubMed
- Barnes DM, Davis AJ, Moran T, Portillo CJ, Koenig BA. Informed consent in a multicultural cancer patient population: implications for nursing practice. Nurs Ethics. 1998 Sep; 5(5):412-23. View in PubMed
- McConnell LM, Koenig BA, Greely HT, Raffin TA. Genetic testing and Alzheimer disease: has the time come? Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics & Society. Nat Med. 1998 Jul; 4(7):757-9. View in PubMed
- Koenig BA, Greely HT, McConnell LM, Silverberg HL, Raffin TA. Genetic testing for BRCA1 and BRCA2: recommendations of the Stanford Program in Genomics, Ethics, and Society. Breast Cancer Working Group. J Womens Health. 1998 Jun; 7(5):531-45. View in PubMed
- Ip M, Gilligan T, Koenig B, Raffin TA. Ethical decision-making in critical care in Hong Kong. Crit Care Med. 1998 Mar; 26(3):447-51. View in PubMed
- Patricia A. Marshall, Barbara A. Koenig, Paul Grifhorst, Mirjam van Ewijk. Ethical Issues in Immigrant Health Care and Clinical Research. Handbook of Immigrant Health. 1998 Jan 1; 203-226. View in PubMed
- Hern HE, Koenig BA, Moore LJ, Marshall PA. The difference that culture can make in end-of-life decisionmaking. Camb Q Healthc Ethics. 1998; 7(1):27-40. View in PubMed
- Young EW, Marcus FS, Drought T, Mendiola M, Ciesielski-Carlucci C, Alpers A, Eaton M, Koenig BA, Loewy E, Raffin TA, Ross C. Report of the Northern California Conference for Guidelines on Aid-in-Dying: definitions, differences, convergences, conclusions. West J Med. 1997 Jun; 166(6):381-8. View in PubMed
- Kelly SE, Marshall PA, Sanders LM, Raffin TA, Koenig BA. Understanding the practice of ethics consultation: results of an ethnographic multi-site study. J Clin Ethics. 1997; 8(2):136-49. View in PubMed
- Casper MJ, Koenig BA. Reconfiguring nature and culture: intersections of medical anthropology and technoscience studies. Med Anthropol Q. 1996 Dec; 10(4):523-36. View in PubMed
- Koenig BA. The power (and limits) of proximity. Hastings Cent Rep. 1996 Nov-Dec; 26(6):30-2. View in PubMed
- Drought TS, Koenig BA, Raffin TA. Advance directives. Changing our expectations. Chest. 1996 Sep; 110(3):589-91. View in PubMed
- Koenig BA, Hogle LF. Organ transplantation (re)examined? Med Anthropol Q. 1995 Sep; 9(3):393-7; discussion 398-9. View in PubMed
- Koenig BA, Gates-Williams J. Understanding cultural difference in caring for dying patients. West J Med. 1995 Sep; 163(3):244-9. View in PubMed
- Orona CJ, Koenig BA, Davis AJ. Cultural aspects of nondisclosure. Camb Q Healthc Ethics. 1994; 3(3):338-46. View in PubMed
- Muller JH, Koenig BA. When is a patient "dying"? Calif Nurse. 1988 Jun; 84(5):4-5. View in PubMed
- Koenig BA. Should anencephalic infants be used as organ donors? Calif Nurse. 1988 Mar; 84(2):8-9. View in PubMed
- Jonsen AR, Cooke M, Koenig BA. AIDS and ethics. Issues Sci Technol. 1986; 2(2):56-65. View in PubMed
- Ashok Kumbamu, Gail Geller, Aaron Leppin, Cara Fernandez, Jon Tilburt, and Barbara Koenig. Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology. The Journal of Alternative and Complementary Medicine. 0(0):1-7. View in PubMed